August 2025 Cure PDE Community Update

Catch up on the latest news from across the Cure PDE community in this August 2025 update.

The conversation covers progress in PDE research, newborn screening efforts, resources for tracking lysine, fundraising updates, and preparations for the 2025 Family Retreat in Colorado. Families also share community news and celebrate progress happening both within the foundation and at home.

back to all webinars

Cure PDE Family Retreats

Our Family Retreats bring families from across the United States and Canada together for connection, education, research updates, and time with others who understand the PDE journey.

More Ways to Connect

Cure PDE brings families, researchers, clinicians, and advocates together throughout the year through in-person gatherings and educational conversations.

Explore Family Retreats