Revised: October 10, 2023

Thank you for choosing to be part of our community at Cure PDE Foundation, doing business as CurePDE.org (“CurePDE.org,” “we”, “us”, or “our”). We are committed to protecting your personal information and your right to privacy. If you have any questions or concerns about our policy or our practices with regards to your personal information, please contact us at info@curepde.org or by using the contact information at the end of this privacy policy.
When you visit our website https://www.curepde.org and use our services, you trust us with your personal information. We take your privacy very seriously. In this privacy policy (this “Policy”), we seek to explain what information we collect, how we use it, and what rights you have in relation to it. We hope you take some time to read through it carefully, as it is important. If there are any terms in this privacy policy that you do not agree with, please discontinue use of our Sites and our services.

This privacy policy applies to all information collected through our website, such as https://www.curepde.org/ (the “Site”), and/or any related services (we refer to them collectively in this privacy policy as the 'Services'). This Policy is incorporated as part of our Terms of Use and any words that are not defined in this Policy shall share their definition with those Terms. -Your access to or use of our Services represents your acknowledgement of and agreement to both this Policy and those Terms and your consent to our collection, processing, use, and storage of your personal information. You may withdraw your consent at any time by submitting a request to us at info@curepde.org. Providing your personal information is a contractual requirement that is necessary for us to provide you with services you may request. If you do not provide your information or if you withdraw your consent, we may be unable to provide the services that you request. If you are a resident of the European Union, you explicitly consent to the processing and storage or your personal information within the United States of America, which has not received an adequacy decision from the European Union Commission.

Please read this privacy policy carefully as it will help you make informed decisions about sharing your personal information with us.

1. WHAT INFORMATION DO WE COLLECT?

In Short: We collect personal information that you provide to us such as name and email address.

Our website collects information that identifies, relates to, describes, references, is capable of being associated with, or could reasonably be linked, directly or indirectly, with a particular consumer or device (“personal information”). The personal information that we collect depends on the context of your interactions with us and the Services, the choices you make and the products and features you use.

2. HOW DO WE USE YOUR INFORMATION?

In Short: We process your information for purposes based on legitimate business interests, the fulfillment of our contract with you, compliance with our legal obligations, and/or your consent.

We use personal information collected via our Services for a variety of business purposes described below. We process your personal information for these purposes in reliance on our legitimate business interests, in order to enter into or perform a contract with you, with your consent, and/or for compliance with our legal obligations. Specifically, we use the information we collect or receive:

• To send you email communications. We may use personal information for our communication purposes, if you have signed up for a newsletter or similar communication. You can opt-out of our such emails at any time. We do not disclose your information to other parties’ marketing purposes.
• To send administrative information to you. We may use your personal information to send you product, service and new feature information and/or information about changes to our terms, conditions, and policies.
• To post blog entries. We may allow you to submit blog entries for posting on our Services that may contain personal information. Prior to posting such information, we will obtain your consent to use your name and contribution. If you wish to update, or delete your blog entry, please contact us at info@curepde.org and be sure to include your name, contribution location, and contact information.
• Request Feedback. We may use your information to request feedback and to contact you about your use of our Services.
• To protect our Services. We may use your information as part of our efforts to keep our Services safe and secure (for example, for fraud monitoring and prevention).
• To enable user-to-user communications. We may use your information in order to enable user-to-user communications with each user's consent.
• To enforce our terms, conditions and policies for Business Purposes, Legal Reasons, and Contractual Obligations.
• To respond to legal requests and prevent harm. If we receive a subpoena or other legal request, we may need to inspect the data we hold to determine how to respond.
• To deliver services to the user. We may use your information to provide you with the requested service.
• To respond to user inquiries/offer support to users. We may use your information to respond to your inquiries and solve any potential issues you might have with the use of our Services.
• For other Business Purposes. We may use your information for other Business Purposes, such as data analysis, identifying usage trends, determining the effectiveness of our promotional campaigns and to evaluate and improve our Services, products, marketing and your experience. We may use and store this information in aggregated and anonymized form so that it is not associated with individual end users and does not include personal information. We will not use identifiable personal information without your consent.
  
  

We will not collect additional categories of personal information or use the personal information we collected for materially different, unrelated, or incompatible purposes without providing you notice.

3. WILL YOUR INFORMATION BE SHARED WITH ANYONE?

In Short: We only share information with your consent, to comply with laws, to provide you with services, to protect your rights, or to fulfill business obligations.
We may process or share data based on the following legal basis:

• Consent: We may process your data if you have given us specific consent to use your personal information in a specific purpose.
• Legitimate Interests: We may process your data when it is reasonably necessary to achieve our legitimate business interests, including those described in this Policy
• Performance of a Contract: Where we have entered into a contract with you, we may process your personal information to fulfill the terms of our contract.
• Legal Obligations: We may disclose your information where we are legally required to do so in order to comply with applicable law, governmental requests, a judicial proceeding, court order, or legal process, such as in response to a court order or a subpoena (including in response to public authorities to meet national security or law enforcement requirements).
• Vital Interests: We may disclose your information where we believe it is necessary to investigate, prevent, or take action regarding potential violations of our policies, suspected fraud, situations involving potential threats to the safety of any person and illegal activities, or as evidence in litigation in which we are involved.
  
  

More specifically, we may need to process your data or share your personal information in the following situations:

• Vendors, Consultants and Other Third-Party Service Providers. We may share your data with third party vendors, service providers, contractors or agents who perform services for us or on our behalf and require access to such information to do that work. Examples include: data analysis, email delivery, hosting services, provision of certain of the Services, customer service and marketing efforts. We may allow selected third parties to use tracking technology on the Services, which will enable them to collect data about how you interact with the Services over time. This information may be used to, among other things, analyze and track data, determine the popularity of certain content and better understand online activity. Unless described in this Policy, we do not share, sell, rent or trade any of your information with third parties for their promotional purposes.
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When we disclose personal information to a third-party for a business purpose, we strive to enter a contract that describes the purpose and requires the recipient to both keep that personal information confidential and not use it for any purpose except performing the contract.

4. DO WE USE COOKIES AND OTHER TRACKING TECHNOLOGIES?

In Short: We may use cookies and other tracking technologies to collect and store your information.

We may use various tools to enhance the Site user experience and track users of the Site, including cookies and web beacons. Cookies are small pieces of text that a website places on your computer to help remember information about your visit. Web beacons are tiny graphics with a unique identifier that are embedded invisibly on the web pages. Neither cookies nor web beacons can read data off your computer’s hard drive or collect your personal information. We use information collected from cookies and web beacons to improve your experience and the overall quality of our services. We may also use cookies and web beacons to collect information from third parties (such as Google) to help advertise our products and services, to analyze the effectiveness of our marketing or the performance of this Site, and to determine whether you may be interested in other products or services. We also use web beacons to help deliver cookies and compile analytics. Our cookies and web beacons may also come from third-party service providers who have permission to place such tools on our site. We may share this information with data processors or other vendors in facilitating our Site, though we do not sell this information to anyone.

You can refuse to accept and delete cookies by adjusting your browser settings. Please note that refusing or deleting cookies may impact your browsing experience on the Site or prevent you from using some of its services, and it may result in the deletion of any preferences you have set. For more information on how to reject or delete cookies, you should consult with your browser’s or device’s help documentation or visit www.aboutcookies.org. The Company does not use technology that recognizes do-not-track signals from your browser. You can also opt out of Internet-based advertising by installing a browser plugin from the third party where available. For more information about interest- based advertising, please see: https://www.networkadvertising.org/managing/opt_out.asp.

In addition, in the course of ensuring network security and consistent service for all users, we employ software programs to do such things as monitor network traffic, identify unauthorized access or access to nonpublic information, detect computer viruses and other software that might damage our computers or the network, and monitor and fine-tune the performance of our network and this Site. In the course of such monitoring, these programs may detect additional information from your computer such as your IP address, addresses from network packets, and other technical information. Any such information is used only for the purpose of maintaining the security and performance of our networks and computer systems.

5. HOW LONG DO WE KEEP YOUR INFORMATION?

In Short: We keep your information for as long as necessary to fulfill the purposes outlined in this privacy policy unless otherwise required by law.

We will only keep your personal information for as long as it is necessary for the purposes set out in this privacy policy, unless a longer retention period is required or permitted by law (such as tax, accounting or other legal requirements).

When we have no ongoing legitimate business need to process your personal information, we will either delete or anonymize it, or, if this is not possible (for example, because your personal information has been stored in backup archives), then we will securely store your personal information and isolate it from any further processing until deletion is possible.

6. HOW DO WE KEEP YOUR INFORMATION SAFE?
In Short: We aim to protect your personal information through a system of organizational and technical security measures.

We have implemented appropriate technical and organizational security measures designed to protect the security of any personal information we process. However, please also remember that we cannot guarantee that the internet itself or any of these processes are 100% secure. Although we will do our best to protect your personal information, transmission of personal information to and from our Services is at your own risk. You should only access the services within a secure environment.

We provide Site communications secured with SSL so you may submit your information via https capabilities. If your browser indicates that our SSL certificate is invalid, please ensure that you have entered the correct URL, and contact the email address below to inform us of the issue if it persists.

7. DO WE COLLECT INFORMATION FROM MINORS?

In Short: We do not knowingly collect data from or market to children under 18 years of age.
We do not knowingly solicit data from or market to children under 13 years of age. By using the Services, you represent that you are at least 13 or that you are the parent or guardian of such a minor and consent to such minor dependent’s use of the Services. If we learn that personal information from users less than 13 years of age has been collected, we may deactivate the account and take reasonable measures to promptly delete such data from our records. If you become aware of any data we have collected from children under age 13, please contact us at info@curepde.org

8. WHAT ARE YOUR PRIVACY RIGHTS?

In Short: You may terminate your account at any time, and you may request to delete, amend, rectify, or obtain access to your personal information at any time.

This section describes your rights and explains how to exercise those rights. The jurisdiction in which you reside may specify that you have certain rights concerning your personal information. We offer all users the right to exercise the rights below.

Access to Specific Information and Data Portability Rights
You have the right to request that we disclose which categories of information we collect about you (the right to access) or the specific items of information we have about you in a easily-portable form (the right to data portability).

You may request that we delete any of your personal information that we collected from you and retained, subject to certain exceptions. Once we receive and confirm your verifiable consumer request, we will delete (and direct our service providers to delete) your personal information from our records, unless an exception applies.

We may deny your deletion request if retaining the information is necessary for us or our service provider(s) to:

1. Complete the transaction for which we collected the personal information, provide a service that you requested, take actions reasonably anticipated within the context of our ongoing business relationship with you, or otherwise perform our contract with you.
2. Detect security incidents, protect against malicious, deceptive, fraudulent, or illegal activity, or prosecute those responsible for such activities.
3. Debug products to identify and repair errors that impair existing intended functionality.
4. Exercise free speech ensure the right of another consumer to exercise their free speech rights, or exercise another right provided for by law.
5. Engage in public or peer-reviewed scientific, historical, or statistical research in the public interest that adheres to all other applicable ethics and privacy laws, when the information’s deletion may likely render impossible or seriously impair the research’s achievement, if you previously provided informed consent.
6. Enable solely internal uses that are reasonably aligned with consumer expectations based on your relationship with us.
7. Comply with a legal obligation.
8. Make other internal and lawful uses of that information that are compatible with the context in which you provided it.
   
   

Exercising Access, Data Portability, and Deletion Rights, and Withdrawing Consent

To exercise the access, data portability, and deletion rights described above or to withdraw your consent to processing of your personal information, please submit a verifiable consumer request to us by either:

• Emailing us at info@curepde.org with the type of request you are making (“Data Deletion Request”, “Data Access Request”, or “Data Portability Request”) in the subject line.

Only you, or a person authorized by law to act on your behalf, may make a verifiable consumer request related to your personal information.
You may only make a verifiable consumer request for access or data portability twice within a 12-month period. To verify that you are the data subject who the request relates, please:

• Provide sufficient information that allows us to reasonably verify you are the person about whom we collected personal information or an authorized representative.

We will only use personal information provided in a verifiable consumer request to verify the requestor’s identity or authority to make the request.

Personal Information Sales Opt-Out and Opt-In Rights

As described above, we only disclose your information for business purposes to certain service providers who agree to handle your data safely and for only those purposes. We do not knowingly disclose your personal information to any third-parties in exchange for monetary compensation or for their (or another party’s) marketing purposes. Therefore, there is no need to opt-out of this practice as we do not engage in it. We will respond to any requests to exercise a right to opt-out of the sale of data with this information.

You may opt-out of our marketing messages as described in our Privacy Policy.

Opting out of email communication

You can unsubscribe from our email list at any time by clicking on the unsubscribe link in the emails that we send. You will then be removed from the email list; however, we may still need to send you service- related emails that are necessary for the administration and use of the Site. We do not sell your information to third-parties for marketing purposes nor do we share your information outside of the scope of this Policy; therefore, there is no need for you to opt-out of these practices, though you may confirm this by emailing us at the address below.

CONTROLS FOR DO-NOT-TRACK FEATURES

Most web browsers and some mobile operating systems and mobile applications include a Do-Not-Track (“DNT”) feature or setting you can activate to signal your privacy preference not to have data about your online browsing activities monitored and collected. No uniform technology standard for recognizing and implementing DNT signals has been finalized. As such, we do not currently respond to DNT browser signals or any other mechanism that automatically communicates your choice not to be tracked online. If a standard for online tracking is adopted that we must follow in the future, we will inform you about that practice in a revised version of this Policy.

11. DO EUROPEAN UNION RESIDENTS HAVE SPECIFIC PRIVACY RIGHTS?

In Short: Yes, residents of the EU are granted specific rights concerning filing a complaint with a supervisory authority.

Each member state of the European Union has established one or more supervisory authorities that are empowered to promote and enforce the General Data Protection Regulation. If you reside in the European Union, you may submit a complaint regarding your personal information to a supervisory authority. This right is in addition to the rights discussed in this Policy.

12. DO WE MAKE UPDATES TO THIS POLICY?

We may update this privacy policy from time to time. The updated version will be indicated by an updated “Revised” date and the updated version will be effective as soon as it is accessible. If we make material changes to this privacy policy, we may notify you either by prominently posting a notice of such changes or by directly sending you a notification. We encourage you to review this privacy policy frequently to be informed of how we are protecting your information.

13. HOW CAN YOU CONTACT US ABOUT THIS POLICY?

If you have questions or comments about this policy, you may email us at info@curepde.org or by post to:

Cure PDE Foundation
501 Silverside Rd Ste 123
Wilmington, DE 19809