Join Us for a Community Gathering on February 22nd, 2024!

We are thrilled to extend a warm invitation to all of you for an upcoming Zoom meeting designed to bring us closer together.

Family Outreach Survey

We’re excited to share a unique opportunity for you to contribute directly to the future of PDE research.

Our First Webinar! Meet the Researchers!

Big news – we’re hosting our FIRST webinar on Pyridoxine-Dependent Epilepsy (PDE) research on January 25th, and you’re invited!

PDE Survey for Patients and the CHARLIE Consortium

This blog post introduces the CHARLIE Consortium, a group of researchers dedicated to studying Pyridoxine-Dependent Epilepsy (PDE).

Neurology and Art. A dive into Dr. Philip Pearl’s webinars through ICNA

Here we highlight some talks that have been given by Dr. Philip Pearl who is affiliated with Boston Children’s Hospital; William G. Lennox Chair and Professor of Neurology
Harvard Medical School. These talks are hosted through ICNA.

Looking to Hear From Researchers and BioTech!

We have compiled a list of researchers we would love to hear from and want to know about the ones we have missed. We are putting together webinars and funding opportunities for those who want to make a difference in this field.

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