Join Us for a Community Gathering on February 22nd, 2024!

February 4, 2024

Register here

We are thrilled to extend a warm invitation to all of you for an upcoming Zoom meeting designed to bring us closer together.

When: February 22, 2024, at 12:00 PM Eastern Time (US and Canada)

This gathering is more than just a meeting; it’s an opportunity for each of you to share, listen, and envision the future of our community together. Whether you’re a parent, a caregiver, or just someone passionate about making a difference in the world of PDE, your voice matters.

What to Expect

We want to hear from you about what you envision for our community. Do you have ideas for events, webinars, or forums? Are there specific areas of research or collaboration you’re passionate about? Perhaps you’re interested in leading a project or initiative that’s close to your heart. This meeting is your platform to let us know how you’d like to contribute and shape our collective efforts.

Why Your Involvement Matters

Whether you’re interested in running forums, organizing webinars, spearheading collaborations, or simply learning more about how you can support our cause, there’s a place for you here. Together, we can make meaningful strides towards understanding and managing PDE, providing support where it’s needed most.

How to Join

Ready to make your voice heard and connect with like-minded individuals? Here’s how you can join us:

  1. Register in advance for our Zoom meeting via the following link:
  2. After registering, you’ll receive a confirmation email with all the details you need to join the meeting.

We’re looking forward to an engaging, inspiring, and productive session. This is your chance to become an integral part of our journey, to share your ideas, and to help us shape a future where every family touched by PDE feels supported and empowered.

  1. Sarah J. McBride says:

    New to this group! Have a daughter, 59, and a son, 54, that have been effected by lack of vitamin B6 at birth!
    Very interested in learning more about it!!!!

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