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Our blog is a warm and welcoming space where families touched by PDE can freely share their unique journeys, experiences, and triumphs, believing that every story holds the power to inspire, educate, and unite.
Real people, Real stories
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Meet Jack: After months of misdiagnoses and intractable seizures, Jack was finally diagnosed with Pyridoxine Dependent Epilepsy. Read about his challenging early journey and how he’s overcoming the odds every day.
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A family shares their story with PDE.
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In the first part of our journey, we shared the initial struggles and uncertainties we faced as Andre was born and diagnosed with Pyridoxine-Dependent Epilepsy (PDE).
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We wrote this story about Andre in 2014 when he was 3 years old. We wanted to post it as it was to be able to reflect back on where we were and where we are now.
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