This blog post introduces the CHARLIE Consortium, a group of researchers dedicated to studying Pyridoxine-Dependent Epilepsy (PDE).

PDE Survey for Patients and the CHARLIE Consortium

Jaxson’s PDE Story

A family shares their story with PDE.

Neurology and Art. A dive into Dr. Philip Pearl’s webinars through ICNA

Here we highlight some talks that have been given by Dr. Philip Pearl who is affiliated with Boston Children’s Hospital; William G. Lennox Chair and Professor of Neurology
Harvard Medical School. These talks are hosted through ICNA.

We have compiled a list of researchers we would love to hear from and want to know about the ones we have missed. We are putting together webinars and funding opportunities for those who want to make a difference in this field.

Looking to Hear From Researchers and BioTech!

Our Plan of Events for 2024

As we head into 2024, we have compiled a list of events we would like to host in the New Year.

Treatment of PDE-ALDH7A1 in Current Perspectives and Questions

This article was published in March of 2023 and reviews the most up-to-date progress in pyridoxine-dependent epilepsy (PDE-ALDH7A1). This section focuses on treatment options.

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