Maverick’s story follows his family from unexplained seizures at just six days old to discovering PDE, finding the right treatment, and watching him grow into a creative, thriving eight-year-old.

Nikola’s story shares his journey from severe complications and seizures hours after birth to a PDE diagnosis and the ongoing treatment, care, and determination that help him keep moving forward.

If you read our blogs, it’s time to catch you up! 📍 Family Retreat – October 3–5, 2025 – Aurora, CO Let’s start with some exciting news: our PDE Family Retreat is happening October 3–5, 2025, in beautiful Aurora, Colorado!One of the highlights this year will be a special tour of the Coughlin Lab at the University of Colorado […]

Harrison’s story follows his family from a terrifying newborn hospitalization and unexpected PDE diagnosis to finding support, adapting to treatment, and watching him grow stronger every day.

Ava’s story follows her family from frightening newborn seizures and a rare PDE diagnosis to finding the right treatment and watching her grow into a thriving, seizure-free child.

Meet Cleo: Despite a healthy start, Cleo faced feeding challenges, seizures, and open-heart surgery before being diagnosed with PDE.

Meet Ruby: A tough start to life led to intense NICU care and heartache before she was finally diagnosed with PDE.

Meet Maverick: Diagnosed with Pyridoxine Dependent Epilepsy as a newborn. Read about his journey from life-threatening seizures to a happy, thriving 7-year-old.

Meet Finley: Born via C-section and diagnosed with Pyridoxine Dependent Epilepsy after a series of life-threatening seizures. Read about her journey from those terrifying early days to a thriving, seizure-free life.