We look forward to creating a vibrant and supportive community through our upcoming events, and we encourage you to stay tuned for updates on our website and social media channels. Together, we can make a difference in the lives of those impacted by PDE.

join the waitlist

For researchers and healthcare professionals, these events will be an invaluable opportunity to exchange ideas, share the latest research findings, and work towards finding new treatments and ultimately a cure for PDE.

Title

Big news, everyone! We’re putting together the very first face-to-face meet-up for the PDE community – that’s us, the researchers, advocates, and all you amazing families dealing with Pyridoxine-Dependent Epilepsy. This get-together is happening on October 5th-6th in Dallas, TX. It’s going to be a great chance for all of us to connect, share stories, and chat about how we can push forward in our fight against PDE.

register interest HERE

First In-Person PDE Community Meeting in Dallas, TX!

Here’s the scoop:
When: Jan 25, 2024 12:00 PM Eastern Time (US and Canada)
Recording can be found here.
Blog post can be found here.

No Registration needed

Introduction to CurePDE 

Hi all! We are hosting our first community get together to foster a sense of collaboration between us as families as we shape CurePDE. Feel free to come with ideas or projects you want to take on.

Community Webinar in February
February 22nd 12 pm EST

We spent the time to plan our family retreat for October 2024.

Link to webinar here.

register interest HERE

March 2024 Webinar- Family 
Retreat Planning

Jen talked to us about calculating diet and protein calculations for kids with PDE.

Link to webinar here.

register interest HERE

April 2024 Webinar- Community Webinar on Diet for PDE

Dr. Sid Gospe talks to us about the different types of PDE.

Link to webinar here.

register interest HERE

May 2024 Webinar- Scientific
Webinar with Dr. Sid Gospe

Connie spent time talking to us about common health conditions in kids with PDE.

Link to webinar here.

register interest HERE

June 2024 Webinar- Common health conditions family webinar

Leah talks to us about their journey with PDE and her work with various advocacy groups.

Link to webinar here.

register interest HERE

July 2024 Webinar- Family advocacy and PDE Journey

Stay Connected, Join Our Newsletter Today!
Be the first to receive updates on PDE research, inspiring stories, and community events. Sign up now and become a part of our supportive network in the fight against pyridoxine-dependent epilepsy. Together, we can make a difference.
Thank you for subscribing!

real people, real stories

share your story

view all stories

READ MORE

READ MORE

Our blog is a warm and welcoming space where families touched by PDE can freely share their unique journeys, experiences, and triumphs, believing that every story holds the power to inspire, educate, and unite.

READ MORE

READ MORE

READ MORE

Our blog is a warm and welcoming space where families touched by PDE can freely share their unique journeys, experiences, and triumphs, believing that every story holds the power to inspire, educate, and unite.

READ MORE

Our blog is a warm and welcoming space where families touched by PDE can freely share their unique journeys, experiences, and triumphs, believing that every story holds the power to inspire, educate, and unite.

real people, real stories

share your story

view all stories

Title

Overview

Welcome to CurePDE - we are a family that wants to help other families understand PDE through connection and education. If you're a family member seeking answers about this rare disease, you're in the right place. Let's begin by unraveling the fundamentals of PDE to empower you with knowledge and hope. We are also always looking for contributors and feedback. If you are a researcher, student, or just interested in PDE, please feel free to submit content to our site. This information was last updated September 20th, 2023 and is based on the references sited.




What is Pyridoxine-Dependent Epilepsy (PDE)? 

learn more about pde

© 2023 Cure PDE Foundation | All Rights Reserved | Terms of Use | Privacy Policy