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From in-person gatherings to expert-led conversations, our community events create opportunities to connect, learn, share experiences, and stay informed about the work moving PDE research and care forward.
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At Cure PDE, we’re dedicated to bringing families, researchers, clinicians, and advocates together to build a stronger community and deepen our understanding of pyridoxine-dependent epilepsy.
Community + Events
Webinars & Conversations
Hear directly from researchers, medical experts, families, and advocates through conversations covering PDE research, care, treatment, genetics, advocacy, and community experiences.
Upcoming Events
Stay connected to what’s coming next with Cure PDE, from family gatherings and conferences to community events and educational opportunities.
Cure PDE Family Retreats
Our Family Retreats bring families from across the United States and Canada together for connection, education, research updates, and time with others who understand the PDE journey.
Our blog is a warm and welcoming space where families touched by PDE can freely share their unique journeys, experiences, and triumphs, believing that every story holds the power to inspire, educate, and unite.
Real people, Real stories
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Empowering Hope, Uniting Families, and Advancing Research
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