Looking to Hear From Researchers and BioTech!

December 19, 2023

Dear Scientific and BioTech Community!

We are looking to build a resource for PDE Families to understand the research that is going on around PDE and rare disease treatments.

We have compiled a list of researchers we would love to hear from and want to know about the ones we have missed. We are putting together webinars and funding opportunities for those who want to make a difference in this field.

Our current list of researchers to reach out to includes the following (in no particular order). Please help us source more!

  • Curtis R. Coughlin II: Associate Professor University of Colorado Anschutz Medical Campus, USA
  • Johan L.K. Van Hove: Section of Clinical Genetics and Metabolism, Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA
  • Sidney M. Gospe Jr.: Herman and Faye Sarkowsky Endowed Chair of Child Neurology Emeritus, Professor Emeritus, Neurology and Pediatrics University of Washington
  • Renanata C. Gallagher: Director, Biochemical Genetic Medicine, UCSF Benioff Children’s Hospital, USA
  • Phillip Pearl:  Director of Epilepsy and Clinical Neurophysiology at Boston Children’s Hospital and William G. Lennox Chair and Professor of Neurology at Harvard Medical School, USA
  • Sylvia Stockler: Investigator, BC Children’s Hospital Program Director, Biochemical Diseases, BC Children’s Hospital. Head, Division of Biochemical Diseases, Department of Pediatrics, Faculty of Medicine, University of British Columbia. Canada
  • Hans Hartmann: Consultant at Hannover Medical School, Germany
  • Peter Clayton: Professor at UCL Institute of Child Health, UK

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